Spina Bifida Association of Western Pennsylvania

Options: Vision, Mission and/or Purpose of Organization

Spina Bifida Association of Western Pennsylvania is committed to improving the quality of life for people with spina bifida and their families by providing a continuum of support services, education and advocacy.

History of Organization:

The Spina Bifida Association of Western PA (SBAWP) is a nationally recognized, charitable, nonprofit provider of information and direct services to children and adults with spina bifida and their families. The organization annually serves nearly 1000 children, teens and adults living in 28 counties within Western Pennsylvania and portions of New York, Ohio, and West Virginia.

SBAWP was originally formed in 1969 as a parent support group, and now offers a variety of programs and services including camps and retreats, a Family-School Partnership program, the Gatehouse Prevocational and Life Skills Program and Adult Community and Support Services. Through its programs and services that span a lifetime, the SBAWP gives individuals the resources, self-confidence, and practical skills to lead full and active lives and become contributing members of the community.

The Association corporate office is located just south of Cranberry Twp., PA and employs a part-time and full-time staff of trained professionals as well as administrative and support personnel. The organization is governed by a board of directors comprised of members of the community, parents of children with spina bifida and business and medical professionals. Programming and operating costs are funded by individual donations as well as Federal, state, corporate and private grants.

Legal Structure

Non-profit corporation

Funding Sources

Less than 8% of our income is derived from grants. The balance of our funding comes from individual donations.


Key Leaders

Name* Title/Description (Executive Director, Vice President, etc.) Phone Number 1 Phone Number 2 Fax Number Email Address
Adele Duffy Executive Director

Contact Information

Contact Phone Numbers

Number* Title / Description (Telephone, Toll free, Fax, etc.)
(800) 243-5787 Phone
(724) 934-9610 Fax

Contact Emails

Email* Title / Description (Director, General, Intake, etc.)

Web Addresses

Website* Title / Description (National, Local office, etc.)

Primary Address


1158 Dutilh Road
Mars, PA 16046
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Service Area

28 counties in Western Pennsylvania and portions of New York, Ohio and West Virginia

Services Provided

Service Description

  • Offers programs for children and adults:

    Summer Camp - Ages 6 to young adult

    The Gatehouse - A residential independence training center for adults with disabilities geared toward the transition from home to independent living, assisted living or further education.

    Family School Partnership Program - Designed to ensure the educational rights of and act as an advocate for school-aged children and teens with spina bifida.

Available Hours

8:00 a.m. - 5:00 p.m. Monday - Friday

Fees/Cost for Services


Eligibility Requirements

Individuals of any age with spina bifida, hydrocephalus or related developmental disabilities.

Handicap Accessibility

Completely handicap accessible

Speaker Available


Volunteer Use


Volunteer Need


Thank You To Our Sponsors

We are grateful to our many partners who provide financial and operational support.