Sickle Cell Society

Options: Vision, Mission and/or Purpose of Organization

Longer life. Better health. Educated people. These are the primary goals of the treatment program at the Sickle Cell Society, Inc.

The National Institutes of Health recommend a program that promotes awareness, availability and use of comprehensive care to increase longevity and quality of life for patients suffering from sickle cell disease (SCD). These findings and recommendations are also supported by the United States Preventive Services Task Force.

Here at the Society, we have taken these findings and recommendations to heart, with a three-pronged, multi-discipline approach that addresses the medical, psychosocial and educational needs of the SCD patient.

In the process, we can address the needs of an entire community that may currently be undereducated about sickle cell disease

No sickle cell disease patient will be denied services because of their failure to have insurance coverage and/or their inability to pay for services rendered.

History of Organization:

Our Mission Began In The 1960's.

As one of the first community-funded sickle cell disease (SCD) centers in America, the Sickle Society, Inc. provides more services to more adult patients with SCD than any other hospital or agency in Western Pennsylvania. Where other sickle cell centers are part of multi-million dollar National Institutes of Health projects, our center remains a private, community-funded organization.

We did not get here overnight.

Our journey spans four decades, and is a story of perseverance and cooperation that resulted in the creation of the Murray - Irvis Genetic Disease Center, a one-of-a-kind treatment center that is fully supported by the community. To this day, the Society remains a national model of comprehensive, community-based care that is unlike any other center in the nation.

Our three-pronged, multi-discipline approach combines educational, psychosocial and medical services to create a truly comprehensive and holistic care experience.


Key Leaders

Name* Title/Description (Executive Director, Vice President, etc.) Phone Number 1 Phone Number 2 Fax Number Email Address
Neddie C. Hollis, MSW, LCSW Executive Director 412 371 0628

Contact Information

Contact Phone Numbers

Number* Title / Description (Telephone, Toll free, Fax, etc.)
412 371 0628 phone
412 371 0713 fax

Contact Emails

Email* Title / Description (Director, General, Intake, etc.)

Web Addresses

Website* Title / Description (National, Local office, etc.)

Primary Address


Murray-Irvis Genetic Disease Ctr.
7643 Frankstown Ave.
Pittsburgh, PA 15208-1623
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Services Provided

Service Description

  • The Sickle Cell Society offers screening for sickle cell disease and other hemoglobinopathies, health education, genetic, psychosocial, and vocational counseling, medical treatment, hemoglobin and pain management research, and speakers bureau with videos available.

Available Hours

8:30 a.m. - 4:30 p.m., Monday - Friday

Fees/Cost for Services

Private Insurance and fee for service.

Eligibility Requirements

Anyone with sickle cell disease and other hemoglobinopathies.

Speaker Available


Volunteer Use


Volunteer Need


Thank You To Our Sponsors

We are grateful to our many partners who provide financial and operational support.