Muscular Dystrophy Association
Options: Vision, Mission and/or Purpose of OrganizationMDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education. With national headquarters in Tucson, MDA has more than 200 offices across the country, sponsors more than 200 hospital-affiliated clinics and supports more than 330 research projects around the world.
MDA supports more research on neuromuscular diseases than any other private-sector organization in the world. MDA scientists are in the forefront of gene therapy research and have uncovered the genetic defects responsible for several forms of muscular dystrophy, Charcot-Marie-Tooth disease, a form of amyotrophic lateral sclerosis (ALS, or Lou Gehrig's disease), childhood spinal muscular atrophy and several other neuromuscular conditions.
The Association's comprehensive services program includes diagnostic and follow-up medical consultations, flu shots, support groups, MDA summer camps for youngsters, a medical equipment loan program, assistance with equipment repairs and resource referral.
Through its national advocacy program, MDA works to make life better for people with muscular dystrophy and related muscle diseases by providing representation in matters of public policy and research advancement, nationally and internationally; and facilitating active involvement in these areas by the people it serve
Service areas: Armstrong, Beaver, Butler, Clarion, Clearfield, Indiana, Lawrence, and Jefferson Counties.
Clinics: Children's Hospital and Falk Clinic - Pittsburgh, Geisinger Medical Center - Danville, and St. Elizabeth Hospital - Youngstown, OH.
Leadership
Contact Information
Contact Person(s)| Name* | Title/Description (Intake Specialist, Secretary, etc.) | Phone Number 1 | Phone Number 2 | Fax Number | Email Address |
|---|---|---|---|---|---|
| Kimberly Clouse | |||||
| Number* | Title / Description (Telephone, Toll free, Fax, etc.) |
|---|---|
| 412-823-3094 | Pittsburgh Office |
| 412-823-3206 | Pittsburgh Fax |
| 800-572-1717 | National Office |
| Email* | Title / Description (Director, General, Intake, etc.) |
|---|---|
| pittsburgheast@mdausa.org | |
| mad@mdausa.org |
| Website* | Title / Description (National, Local office, etc.) |
|---|---|
| mda.org/office/pittsburgh | Western PA |
| mda.org/ | National Site |
Pittsburgh Area
Address:400 Penn Center Boulevard
Suite 524
Pittsburgh, PA 15235
Map It
- The Muscular Dystrophy Association offers public and professional education, diagnostic evaluation/follow-up, counseling, recreation, transportation, orthopedic, genetic counseling, summer camp, and family social functions.
9:00 a.m. - 5:00 p.m., Monday - Friday
Fees/Cost for ServicesNone
Eligibility RequirementsPersons diagnosed as having Muscular Dystrophy related neuromuscular diseases.
Speaker AvailableNo
Volunteer UseNo
Volunteer NeedNo
